That's one of the things that people die from (with Deirkums), is that they can't swallow. Suddenly, you can't breath or swallow, everything just shuts down, like a seizure, it just seizes up on you. And I have not had a single episode, not a single episode, and that was an immediate reaction.
Heather’s son Zaki, diagnosed with Doose Syndrome, a devastating form of epilepsy, was put on hospice palliative care at the age of 7 after his seizures could not be controlled. Heather was informed by a hospice counselor to get in touch with another family that was seeing some success with cannabis therapy. What happened next astonished her.
After going to her doctor repeatedly for phantom pains, Mary was diagnosed with Dercum’s disease, a rare disorder categorized by painful fatty tissue growths in the body. Mainstream pain medication wasn’t helping, a friend referred her to the Realm of Caring for information; as she tells the story, “They gave me my life back.”
Paige Figi was at the end of the rope to help her daughter, Charlotte, who suffered from hundreds of seizures a day as part of a genetic disorder called Dravet Syndrome. Paige was looking for a way to spare her daughter any further suffering, what she came across online mystified her, so she wanted to learn more…